Clara's scans looked great! Apparently, her brain and kidneys look the same and her lungs look better than a month ago. She had some fluid in the right lung before and there was some sign of compression that they thought was due to general anesthesia from earlier in the week. They didn't give me specifics, nor have I seen the scans, but they did say the lungs were better!
So! This means we do not have to go to the hospital tomorrow or Thursday ANYMORE! Only Monday, Wednesday, and Friday! Not sure for how long. Think it will probably be two months.
Unfortunately, the bumps on her skin are suspected to be GVHD. This is not really what we wanted to hear for many reasons, but mostly we are disappointed that it means we will have to continue to keep giving her IV meds at home for a long while. Just to clarify, the amount of GVHD is small and not worrisome to the doctors. Plus, the med they will continue giving her is fairly benign as far as toxicity to the body. But as long as we have to keep giving her immuno-suppressants, the longer she will be at risk for infection.
1 comment:
YAY! For less hospital visits!
I'm confused about the GVHD. In the beginning I remember reading something you said that made it sound like it would be good to have a "little" bit of GVHD but not a lot obviously. I understand we don't want her to actually have it full fledged. Could you re-explain why a little is good..and if the little bumps are that little bit, which is why the doctors aren't concerned?
In my world I would think you wouldn't want any and any little bit would be bad. So I'm just trying to further understand.
Oh ps
LOVE the standing vid. Had to watch it 5 times!
LOVE!
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